Friday 17 May 2013

Feeling anxious about Wednesday!

So, I am sat on the internet doing some research in to Kidneys, donations, dialysis and all the other crap that goes along with this stupid disease! Don't get me wrong, I am not the sort of person who looks on the internet and starts to go in to a blind panic, I just like to know what is going on and being said, so when the doctors and nurses start telling me things, I am not sat there scratching my head wondering why they are talking a foreign language!

I know for definite that I will be having a kidney transplant, that is a certainty. However, how the transplant comes about is not a certainty. My Dad has very kindly offered to be tested to see if he is a suitable match to be a living donor. The only issue is, we are not the same blood group! So if my Dad is a tissue match, it would be a blood group incompatible kidney transplant. If my Dad is not a match then the next step could possibly be the paired-donation scheme.

If that is not an option then the next stage would be when I am almost at the point of needing dialysis, then I would go on the NHS kidney transplant waiting list.

There are so many things that worry me about the whole process. Mainly the immunosuppressants and the increased of infections. I have quite a few questions written down to ask the nurse on Wednesday about it all.

I think I just hate the waiting, knowing something is going to happen, but not knowing when. Also not knowing 100% if I will need dialysis or whether I can get a donation before I reach that stage. Everything is so vague, which I hate.

I am the sort of person who has to know everything about what is going on! When Mark and I had a day in London for his birthday I had meticulously planned every little detail, where we were going, how we would get there, how long it would take... I even looked up on Google maps street view so I knew exactly how to get to a restaurant and noted down some shops so as we passed them I checked them off and knew I was on the right track!! So all this Maybe this, could be that is sheer hell to me!

I feel like someone has told me make my way to Scotland, then shoved me out the door without a car or map! I have no clue how I will get there, just that I will!

Hopefully things might be made a little clearer at my appointment on Wednesday, if I can put plans in place for each eventuality I will feel a little bit more secure in knowing what will happen for each situation.

Ugh, hurry up Wednesday, I need to know!

2 comments:

  1. Hope it goes well hun. Xxx I'm on immune suppressants and do get infections more than most but I wouldn't say they have ruined my life. Xxxso try notto worry. X

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  2. Unbelievable, I remembered I was once here in need of help on how to go about the problem of Nephrosis I was having, I must say those years was so frustrating, the experience was something outside the world of being normal,my wife had to join me in search of various kind of help,and the search lasted for 1 year and some months and like a dove sent from heaven, a friend of mine referred me to Dr Johnson a specialist with a difference full of knowledge, with his vaccines/medications and his advice on what to stay clear off and how to approach the problem, after one month of using his product, I was made well, I never believed there is a cure to Nephrosis, but now am a testimony.
    Any one with such problem can contact The Doctor on his mail address at drjohnson958@gmail.com

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